Comments on: Dear God, thanks for the crap, Part 1

By: Freedom Goguen Martinez

Freedom Goguen Martinez — Sun, 17 Feb 2013 03:25:09 +0000

I can’t wait to meet you guys in July! Xo

By: Danielle James Tipton

Danielle James Tipton — Fri, 02 Nov 2012 09:25:18 +0000

You. Are. Awesome. Thank you for sharing! I felt like I was sucker-punched at first diagnosis. I didn’t know what it was until I got home and looked it up. I swear, I almost had a nervous breakdown. We are so much stronger now than we were 2 years ago.

By: Dee Hobson

Dee Hobson — Tue, 30 Oct 2012 23:04:26 +0000

Vivia you are a BEAUTIFUL little girl with such an AMAZING life ahead of you. I pray they will find a cure for JDM very very soon so you will be healed. I know that God has a plan for you so you just keep fighting.

By: Sarah Halladay

Sarah Halladay — Tue, 30 Oct 2012 19:21:21 +0000

There are so many things in this life that leave us humans perplexed. I can’t tell you how many times I’ve asked God, WHY? You are one strong and brave woman( as well as your family). These things that leave us asking why, must be a faith test, that’s all I could get from my situation(s). I’m sure you’ve heard this song, but I have to share it here. It speaks volumes to me in hard and blinding times. http://www.youtube.com/watch?v=0HtXIKvDLy8

By: Suzanne Edison

Suzanne Edison — Tue, 30 Oct 2012 15:47:13 +0000

Yes, YES, YESSSSS! Well said and with just the right amount of black humor. I have been listening to many stories from moms who have kids with all sorts of chronic illnesses/health issues as I write a series of poems based on these conversations. There are so many overlapping and similar emotions with our JDM journey, but some are even more difficult. One mom said, “I found myself envious of another’s illness where I could almost smell a cure”. Her child will never have the chance at “normal”. And yet, and yet, we are all in this together, building and weaving our lives. And the cloth is full of holes and strong in other areas. Thank you for taking the risk of exposure. Suzanne

By: Dear God, thanks for the crap, Part 2 » The Lovely Project

Dear God, thanks for the crap, Part 2 » The Lovely Project — Tue, 30 Oct 2012 08:08:43 +0000

[...] If you haven’t read Part 1 yet, GO HERE. [...]

By: Susan Merrin

Susan Merrin — Tue, 30 Oct 2012 02:35:20 +0000

Freedom this is so well written. I can’t wait to read part 2. You have definitely put words to the feelings that we JM parents/caregivers go through dealing with the initial diagnosis and the treatments that follow. All our kids are so brave in the face of all they go through on a daily basis.
Having battled depression on and off for years and know how easy it is to hide in that world. It takes a strong person to pull themselves up out of the dark and go on for your children.
You have very beautiful children and they have a strong loving mother helping them through their separate journeys.
Sending you lots of love and hugs my dear friend.

By: Freedom Goguen Martinez

Freedom Goguen Martinez — Tue, 30 Oct 2012 01:23:16 +0000

And I, you, my friend!
xo

By: Daniel Tomlinson

Daniel Tomlinson — Tue, 30 Oct 2012 01:13:15 +0000

I’ve battled depression my whole life. May God’s presence empower us both to be what we need to be to those we love. Thank you for sharing.

By: Aimee McCloskey

Aimee McCloskey — Tue, 30 Oct 2012 00:24:06 +0000

freedom , you have so beautifully described MY story ! I can’t turn off the tears . But we are beliving with you !!! for your beautiful girl and my own xx

By: Kristine McDevitt Alderfer

Kristine McDevitt Alderfer — Mon, 29 Oct 2012 23:42:16 +0000

Freedom Goguen Martinez when I see you in January, I am going to give you the longest and biggest hug ever. For putting into words, what all of us moms feel and for making a video that shows the best of the worst and the strength that our kids have. I’m crying because we are there together and we can relate and because our kids are amazing, strong and beautiful.

By: Charles Kincade

Charles Kincade — Mon, 29 Oct 2012 22:01:09 +0000

Oh, Lucy, what an amazing story of an amazing family. My heart aches for them. What courage; what unconditional love.

By: Lucy Payne Tharpe

Lucy Payne Tharpe — Mon, 29 Oct 2012 21:22:18 +0000

This is so real and touching. As a grandparent of a JDM child, I miss seeing on a daily basis the agony of JDM. My heart aches for all these children and the parents who so lovingly take such beautiful care of them.

By: Laura Romot

Laura Romot — Mon, 29 Oct 2012 21:21:55 +0000

Thanks so much for sharing this Free. I can’t fathom what you’ve been through as a mother and what Vivia has had to face on a daily basis. What a brave little girl she is and what an amazing woman she is going to be!!! Love you guys.

By: mary g

mary g — Mon, 29 Oct 2012 20:46:12 +0000

Freedom, wow! What an amazing story! Although I do not know you very well let me just say its an honor and truly inspiring. You have two amazing children and a beautiful family. Vivia has so much life in her and so much joy! There is nothing more inspiring than a family who has believed and continues to hope. You are truly amazing. May you be blessed with great peace, hope, joy, and love!